| | Directory of services and organizations
About this directory:
This directory is an accumulation of information about various organizations and services. We welcome any additional comments or additional resources you would like to share. SEPTA does not necessarily endorse any of these services.
Adolescent/Adult/College Bound Information
This link is a great reference for parents whose children are getting close to college age. It permits people to click on each college in their list, which takes them to the special services page for that college! http://www.pearlriversepta.com/colleges.htm
Assistive Technology http://www.closingthegap.com/home/detail_full.lasso
Camp Chatterbox Director: Joan Bruno (Author of Gateway Software)
Here is a link to the web site as well as a link to their flyer:
http://www.campchatterbox.org/Camp_Chatterbox/Welcome_files/camp10%20flier.pdf
The Parent Center has received many requests from parents and Sp. Ed. directors for a pdf version of the HVSEPC December newsletter on Assistive Technology. Here it is. CLICK HERE to download and print. It has been designed to fit two pages front and back for easy printing and sharing.
Attention Deficit Hyperactivity Disorder (ADHD)
Attention Deficit Disorder Association
19262 Jamboree Boulevard, Irvine, CA 92715;
www.add.org
Attention Deficit Information Network, Inc.
P.O. Box 790, Plymouth, MA 02362-0013
CENTER FOR COLLABORATIVE PROBLEM SOLVING http://www.explosivechild.com/index.html
Children and Adults with Attention-Deficit/Hyperactivity Disorder
499 NW 70th Ave., Ste. 308 Plantation, FL 33322; www.chadd.org
Westchester CHADD (White Plains) (845) 278-3020;
Putnam and vicinity CHADD (Katonah) (845)278-3012
Auditory Training
Spectrum Center Inc. (Tomatis) www.tomatis.org
Therapeutic Listening Program www.vitallinks.net
Autism
New York and Connecticut residents, please note this special opportunity to have access to the Stamford Campus of the University of Connecticut.
Contact: Dr. Sue Izeman
Admissions/Information
chapelhaven@abilis.us
(203) 629-1880, ext. 304
NEW TRANSITION PROGRAM TAKES YOUNG ADULTS FROM HIGH SCHOOL TO REAL WORLD
Chapel Haven Abilis , a transition to independent living day program for young adults with autism and related disorders, is scheduled to open in January 2010 on the UConn/Stamford campus. The program is a collaboration between Abilis, lower Fairfield County's nonprofit service provider for children and adults with developmental disabilities, and Chapel Haven of New Haven, a nationally recognized provider of transition programs. Both agencies are well respected for providing high-quality services for children and adults in Connecticut.
Program Overview
Chapel Haven Abilis will serve young adults age 18 to 24 who are on the Autism Spectrum or have a related disorder. This unique initiative unites the strengths and experience of each agency to help students on the Autism Spectrum and with related disorders reach their highest level of independence and optimize opportunities for employment.
The Chapel Haven Abilis program is built around a social-communicative core. The program will focus on education, career exploration, independent living skills, community access and recreation. The University of Connecticut campus in downtown Stamford will be the main site for the program, with access to classrooms, media center, fitness center, café and other areas. Community-based experiences will be an integral part of the program. The campus is within walking distance of a variety of community options, such as the Ferguson Library, large retail outlets, movie theaters, restaurants and recreational facilities.
Chapel Haven Abilis will be a year-round, five-day program but can be tailored to meet individual needs. Abilis may be a resource for families needing assistance with residential options. The curriculum is built around a two-year time frame, with an optional third year as needed to enhance independence for each student. Using the Chapel Haven curriculum, the first year emphasizes functional academics, vocational skills and community independence. The second year provides opportunities for the student to increase his or her independence and to begin application of vocational skills in real-world work environments.
Admission to Chapel Haven Abilis begins with a phone call to Dr. Susan Izeman, director of the Abilis Autism Program. After the initial contact, application materials will be sent to the student and family. Dr. Izeman and Chapel Haven's VP of Admissions will review intake materials, including current IEPs, psychological and educational evaluations, functional adaptive assessments and vocational assessments. Next, prospective students and their parents will be invited for an interview and campus tour.
Admission is based on the applicant's skills and interest to participate in the program. Chapel Haven Abilis will successfully serve young adults with:
· A diagnosis of Autism, ASD, PDD or a related language or social disability;
· Intellectual functioning in the mild to low average range;
· No serious behavioral or mental health concerns;
· An ability to work in small- to medium-sized groups with minimal assistance; and
· A motivation for increased independence.
For more information about Chapel Haven Abilis or to begin the application process, please contact:
Susan Izeman, PhD, BCBA, Director, Chapel Haven Abilis
Phone: 203-629-1880, x304
Email: chapelhaven@abilis.us
About Chapel Haven: Based in New Haven, Conn., Chapel Haven, Inc. has been a leader in transition programming since 1972. Chapel Haven has maintained a strong local and national reputation for successfully teaching adults with cognitive disabilities to live independently in the community. Chapel Haven has strategically aligned itself with internationally recognized experts in the field of Autism Spectrum Disorders, creating a unique curriculum specifically to meet the needs of this population.
About Abilis: Since 1951, Abilis has set the standard in Fairfield County for person-centered, community-based supports and services for individuals with developmental disabilities. Abilis has developed strong relationships with area school districts, community agencies and families throughout Fairfield County. In 2000, Abilis created the Abilis Autism Program in response to increasing needs of children and teens on the Autism Spectrum and their families.
Autism Family Center www.wjcs.com Check out the upcoming events newsletter!
Autism Family Center
845 North Broadway
White Plains, New York 10603
914 761-0600 ext 228
www.autismspeaks.org
Advocates for Individuals with High Functioning Autism, Asperger's Syndrome, and other Persvasive Developmental Dosorders www.aha-as-pdd.org
Autism Research Institute, www.autismwebsite.com/ari/index.htm
Autism Resource Center, www.autismresourcecenter.info
Autism Society of America
7910 Woodmont Avenue Suite 300
Bethesda, MD 20814-3067
1.800.3AUTISM
http://www.autism-society.org/
Canine Magic, www.caninemagic.org, Autism Service Dogs.
CENTER FOR COLLABORATIVE PROBLEM SOLVING http://www.explosivechild.com/index.html
Defeat Autism Now, www.danconference.com
Foundation for Education of Children with Autism, Inc. (FECA) 914-941-3322(60
Jess Because, Inc. jessbecause@optonline.nethttp://www.jessbecause.org At Jess Because, Inc., we believe that everyone, especially people with disabilities, deserve quality opportunities for Lifelong Learning. We think that experiencing the “Arts”, in all its many forms, is a great way to provide unique learning adventures.
The Gray Center for Social Learning and Understanding, 4123 Embassy Dr., SE, Kentwood, MI 49546, 616-954-9747 www.thegraycenter.org
NJ Center for Outreach and Services for the Autism Community
1450 Parkside Ave., Ste. 22 Ewing, NJ 08638,
609-883-8100
The Autism Program of Virginia
www.autismva.org
National Alliance for Autism Research
99 Wall St., Research Park, Princeton, New Jersey 08540 (609) 430-9160; 888-777-NAAR
(609) 430-9163 (fax); www.naar.org
Parent Link, Westchester Advocates for Individuals with High Functioning Autism, Asperger Syndrome, and other PDDs, Susan Berman 914-763-0971 or Kay Grisar 914-666-2099, www.westchesterparentlink.org
Relationship Development Intervention (RDI)http://www.rdiconnect.com/default.asp
Snagajob.com
- website to locate part-time hourly work in local areas
- great website for trying to find a job for a person with Asperger's who can only work part-time. The parent might have to find job supports to assist the autistic person in learning and retaining the position.
TACA: Talk About Curing Autism, www.tacanow.com/hbot.htm
Westchester Foundation for Autism and Related Disorders
65 Main St. Suite 201, Tuckahoe, NY 10707 914-793-3070
Wall St., Research Park, Princeton, New Jersey 08540 www.WFAutism.org
www.westchestergov.com/mentalhealth
The National Education Association published The Puzzle of Autism. It can be downloaded at: www.nea.org/specialed/images/autismpuzzle.pdf.
Westchester County developed a website devoted to autism at: www.westchestergov.com/mentalhealth/autism.
Web forums for parents of children with HFA and AS:
http://forums.delphiforums.com/hfasd/start
http://forums.delphiforums.com/asfamily/start
http://forums.delphiforums.com/AspergerOasis/start
http://www.aspergerinfo.com/
Websites addressing various spectrum disorders:
http://www.udel.edu/bkirby/asperger/
http://maapservices.org/index.html
http://www.autism-society.org
http://info.med.yale.edu/chldstdy/autism/index.html
http://www.pediatricneurology.com/
http://www.nldontheweb.org/about_nld.htm
http://www.aspennj.org/
http://www.hyperlexia.org/
http://rsaffran.tripod.com/aba.html
http://www.autismtoday.com/index.asp
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Bullying www.respectu.com
Cerebral Palsy
United Cerebral Palsy Associations, Inc.
1522 K Street, NW, Suite 1112, Washington, DC 20005, (202) 842-1266, (800) 872-2827 (Affiliated Relations Dept) (800) 872-5827; www.ucpa.org
United Cerebral Palsy of Westchester (UCP) 914-937-3800
Cystic Fibrosis
Cystic Fibrosis Foundation
6931 Arlington Road Bethesda, MD 20814,
800-344-4823; www.cff.org
Deafness and Hearing Impairment
Alexander Graham Bell Association for the Deaf
3417 Volta Place, NW Washington, DC 20007,
(202) 337-5220; www.agbell.org
American Society for Deaf Children
www.deafchildren.org
American Speech-Language-Hearing Association 10801 Rockville Pike, Rockville, MD 20852,
301-897-5700; www.asha.org
Deaf World Web
www.deafworldweb.org
National Association of the Deaf
814 Thayer Ave., Silver Spring, MD 20910,
301-587-1788; www.nad.org
National Information Center on Deafness (NICD)
Gallaudet University, 800 Florida Avenue, NE Washington, DC 20002, 202-651-5051 (Voice); 202-651-5052 TDD
New York School for the Deaf 914-949-7310
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Developmental Disabilities
American Association on Mental Retardation
1719 Kalorama Road, NW, Washington, DC 20009-2684, (202) 387-1968, (900) 424-3688; www.aamr.org
Arc/Baker International Down Syndrome Center
1621 Luclid Avenue, Suite 514, Cleveland, OH 44115
Consortium of Developmental Disabilities Council
8845 Fort Hunt Road, Alexandria, VA 22308-2850, 703-780-1225; www.cddc.org
Council For Exceptional Children
1920 Association Drive, Reston, VA 22091-1589, 800-328-0272; www.cec.sped.org
Developmental Delay Resources
www.devdelay.org
Down Syndrome Interest Group
3296 Roxbury Road, Hatfield, PA 19440, 215-822-5939
National Down Syndrome Society
P.O. Box 3329, Oakton, VA, 703-938-4041; www.ndss.org
National Organization on Disability (NOD)
910 16th Street, NW, Suite 600, Washington, DC 20006, (202) 293-5960, (800) 248-2253,
(202) 293-5968; www.nod.org
The Arc of the United States www.thearc.org
Westchester Developmental Disabilities Services Office (WDDSO)
914-287-7721
Disability Rights Consortium for Appropriate Dispute
Resolution in Special Education
www.directionservice.org/cadre
Education Advocacy — ARC
Kathy Higgins (914) 347-3227
NYS Commission on Quality of Care for the Mentally Disabled
Advocacy Training Coordinator, Catherine McHugh (518) 473-7378
President’s Committee on Employment of People With Disabilities
1331 F Street, NW, Washington, DC 20004-1107
(202) 376-6200; www.50.pcepd.gov/pcepd/
Student Advocacy, Inc.
(914) 347-3313
The Special Ed Advocate
http://wrightslaw.com
Disabled Persons Clearinghouse on Disability
Information Office on Special Education & Rehabilitative Services
Room 3132, Switzer Building 330 C Street, SW, Washington, DC 20202-2524 (202) 732-1723
Easter Seals
700 13th Street, Washington D.C. 20005 (202) 347-3066; www.easter-seals.org
Education/Educational Board of Cooperative Educational Services (BOCES)
Yorktown Heights--914-245-2700
http://www.pnwboces.org
Cornell’s ILR Program on Employment and Disability
www.ilr.cornell.edu/depts/extension/institutes/home.html?dept_id=55
Excite K-12 Special Education
www.excite.com (914) 946-1313
National Information Center for Children & Youth with Disabilities (NICHCY)
www.nichy.org
NYS Commission on Quality of Care for the Mentally Disabled
Advocacy Training Coordinator, Catherine McHugh (518) 473-7378
NYS Education Department: Office for Children with Handicapping Conditions
(914) 245-0010
Office of Vocational and Educational Services for Individuals with Disabilities-Special Education Policy Unit
(Albany) (518) 473-2878 (Yorktown) (914) 245-0010
Parent News
http://parent.net
Schwab Foundation for Learning
www.schwablearning.org
Special Education & Training Resource Center (SETRC)
(914) 248-2290
http://www.pnwboces.org/specialed/setrc/welcome.html
SSA Teacher’s Kit:
www.ssa.gov/teacher/teacher/html
Vocational and Educational Services for Individuals with Disabilities (VESID)
http://web.nysed.gov/vesid
(914) 946-1313
Westchester Developmental Disabilities Services Office (WDDSO)
(914) 287-7721
Westchester Institute for Human Development
Valhalla, NY 10595, U.S.A. (914) 493-8202; www.nymc.edu/wihd
Westchester Lighthouse
(914) 761-3221
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Dyslexia
The International Dyslexia Association (IDA) www.interdys.org
The Dyslexia Awareness and Resource Center www.dyslexiacenter.org
Epilepsy
Epilepsy Foundation of America
4351 Garden City Drive, Suite 406 Landover, MD 20785, (301) 459-3700 (800) EFA-1000 or
(800) EFA-4050; www.efa.org
Evaluation
Educational assessments, tutoring, counseling www.mindworkscenter.com
General
New York's Family to Family
Health Care Information and Education Center
Links Digest- Volume 77 October 1, 2008
As part of the Family to Family Health Care Information and Education Center , Parent to Parent of NYS has established the Links Digest to provide links relevant to the issues of health care.š Below is the most recent listing of website links which we have found valuable and hope they will be of benefit to others.
1. Advocacy 101 – items that help strengthen advocacy skills –
(Communication skills, parenting skills, letter writing, speaking with professionals, asking questions)
Guidance issued by the National Institutes of Health regarding when students with asthma or allergies should be allowed to carry and self-administer emergency medications at school:
www.nhlbi.nih. gov/health/ prof/lung/ asthma/emer_ med.htm
Specific recommendations for making a classroom presentation on diabetes for elementary school age children:
http://www.joslin. org/770_4403. asp
2. Financing issues – health insurance and other ways to finance the costs of needed services (including grievances, denials and appeals – i.e. Strategies for Appealing Health Plan Decisions)
Tips and strategies for ensuring that Speech and Hearing services are covered under a private health insurance plan:
www.asha.org/ public/coverage/ php.htm
FACES: The National Craniofacial Association provides financial assistance towards the cost of transportation, food, and lodging for eligible families of individuals who are receiving treatment for craniofacial conditions resulting from birth defects, injuries, or disease.š Click the General Information tab from their homepage:
http://www.faces- cranio.org/
3. 504 Accommodation Plans related to Health Conditions (i.e. what are the legal obligations of schools to provide health-related services and therapies? Accommodations needed for equal access)
This resource document provides guidance to school districts regarding the development of a written anaphylactic reaction policy pursuant to the Allergy and Anaphylaxis Management Act of 2007.š It was released jointly by the NYS Department of Health, NYS Education Department, and New York Statewide School Health Services Center in June of 2008:
www.emsc.nysed. gov/sss/document s/AnaphylaxisFin al62508.pdf
4. Who helps with what?š Which state agencies are involved in health care and health coverage?š What do medical and managed care terms mean?š What should families look for in selecting a provider?š What questions should families ask?
The Office of Professional Medical Conduct is responsible for investigating reports of possible misconduct by physicians and physician assistants.š This link provides answers to frequently asked questions:
www.health.state. ny.us/nysdoh/ opmc/faq. htm
5. Parent-to-parent support skill-building (How can parents provide support and assistance to families without substituting their judgment? Understanding and respecting cultural diversity. How can parents be culturally competent in working with diverse families? How can parents emotionally support, inform, and educate parents so that they are strong, knowledgeable, and confident in caring for their child with special health needs?)
Complex Child is a monthly online magazine written primarily by parents of children with special health care needs.š As such, it is a valuable collection of both personal experiences and hard-won expertise written by and for parent peers.š In addition to feature articles that address a specific monthly topic, it also includes articles that provide information about specific medical conditions, care tips, and advocacy skills development.
www.complexchild. com
6. Keeping Records is a learned skill. Parents will learn what kinds of records are important and how to record necessary information. Your child’s health care providers rely on your records to help them make sound medical recommendations.
This article addresses how to request medical records and has some useful information regarding how long records are retained by providers.š A key tip is to ask for the records as they are generated.š This will surely save frustration and possibly money as well.
www.patients. about.com/ od/yourmedicalre cords/a/getmedre cords.htm
7. Parent-professional collaboration strategies. How can families work with their health care provider to secure quality care and coverage for their child? How can health care provider and families communicate more effectively? What are effective health advocacy strategies? What is a “medical home” and how can parents access it for their child with special health needs?
This video features a pediatrician who gives tips on how to disagree with your doctor while maintaining a positive parent-professional relationship: http://www.youtube. com/watch? v=82mmyh11pcU
Although this article dates back to 2005, it was recently mentioned as a resource in a current patient and family publication from Children’s Hospital Boston.š It discusses how doctors are learning better ways to communicate with families about the diagnosis of Down Syndrome.
http://www.children shospital. org/newsroom/ Site1339/ mainpageS1339P1s ublevel118. html
8. Understanding Medicaid funded Waiver Services (Including the philosophy of individual and family-centered supports)
This brochure from Suffolk Independent Living Organization provides an overview of the Nursing Home Transition and Diversion Waiver.š This will be of particular interest to those who are trying to meet the needs of adult children with special health care needs:
http://www.suffolki lc.org/NHTD_ Brochure. php
9. Legal information - what are the rights of children to medical coverage under Medicaid, SCHIP, fee-for-service coverage. How can families use complaint, arbitration, and grievance procedures to resolve disputes? What are the legal obligations of schools to provide health-related services and therapies?
A review of case law surrounding the issue of when schools are required to provide health-related services to medically involved children:
www.wct-law. com/CM/Publicati ons/publications 51.asp
10. Transition from Pediatric to Adult Health Care and Self Determination in Health Care (the important leadership role that individuals with disabilities and their families must play in moving from pediatric to adult health care).
The Healthy Transitions website is for youth with developmental disabilities ages 14-25 years, family caregivers, support networks, and health care providers.š This interactive, skills-based site can help youth to develop skills for transitioning from the pediatric to the adult healthcare world.š The curriculum and web-based tools raise awareness about developmental disabilities and promote collaboration among youth, families and providers during the transition years.
www.HealthyTransiti onsNY.org
In this brief video, a mother talks about the importance of a health care notebook for her son who is preparing to depart for college:
www.webmd.com/ video/keeping- family-medical- records
11. Fathers A Fathers Perspective:
Marriage and parenting come with their own built in stressors. Throw in the added emotional rollercoaster of a child with special needs and that stress multiplies. Men and woman experience many different emotions and have varying ways of coping and dealing with the feelings, stress and changes to a marriage. Keeping communication open on many areas of marriage is found to be very beneficial to strengthening the marriage. Below are articles that address the balancing act between caring for a child with a disability and the importance of keeping the relationship between mom and dad healthy.
http://www.kidsourc e.com/NICHCY/ parenting. disab.all. 4.2.html
http://autism. about.com/ od/copingwithaut ism/a/marriage. htm
Would you like to speak to Jim Swart, Regional Coordinator supporting the Parent to Parent Fathers Network? email jmswart1@verizon. net
12. Other Links:
In this New York Times article, a physician discusses his decision to “fire” his patient: http://www.nytimes. com/2008/ 06/10/health/ views/10case. html?_r=1&ref=health&pagewanted=print&oref=slogin
In a related story from KABC-TV in Los Angeles , the guidelines from the American Medical Association surrounding the termination of the physician-patient relationship are discussed:
http://abclocal. go.com/kabc/ story?section= news/health&id=6233211
Visit our website at www.parenttoparentn ys.org
Janice Fitzgerald, Executive Director
Parent to Parent of NYS
P.O. Box 1296Tupper Lake, NY 12986
Internet Resources for Special Children: http://www.irsc.org/ . A great listing of links on a wide range of topics.
AMBUCS
P.O. Box 5127 High Point, NC 27262, (919) 869-2166, FAX (919) 887-855; www.ambucs.com
American Physical Therapy Association; www.apta.org
American Red Cross National Headquarters 8111 Gatehouse Road Falls Church, VA 22042,
(202) 737-8300; www.redcross.org
The Council for Exceptional Children (CEC) website (http://www.cec.sped.org/) has links to extensive informational resources, on-line courses, and professional development opportunities. If you just want to receive their free 3x/week news briefing, you can sign up at: http://www.smartbrief.com/cec/
National Association for Home Care
228 7th Street, NE, Washington, DC 20002
(202) 547-7424; www.nahc.org
National Council on Patient Information and Education
666 11th Street, NW, Washington, DC, 20001
National Neurofibromatosis Foundation
95 Pine Street, 16th Floor, New York, NY 10005 (212) 344-NNFF, 800-323-7938 www.neurofibromatosis.org
National Organization on Disability
910 Sixteenth Street, NW, Washington, D.C. 20006 (202) 293-5968; www.nod.org
National Organization for Rare Disorders
100 Rt. 37, P.O. Box 8923, New Fairfield, CT 06812-8923 (203) 746-6518 or (800) 999-6673; http://NORD-RDB.com/~orphan
Yale Child Study Center expanded clinical services at Greenwich Hospital. The Child Study Center has specialty clinics in Early Childhood, Trauma, Learning Disabilities,
Autism Spectrum Disorders, Tourette Syndrome, Obsessive - Compulsive and
Anxiety disorders. www.greenhosp.org or (203) 863-3627 or toll-free (888) 357-2409.
Learning Disabilities
American Academy of Pediatrics
141 Northwest Point Blvd., P.O. Box 927, Elk Grove Village, IL 60009 (708) 228-5005; www.aap.org
Connecticut Association of Children with Learning Disabilities (CACLD)
Serving Westchester County Residents, www.cacld.org (203) 838-5010
LD Online www.ldonline.org
Learning Disabilities Association of America 4156 Library Road, Pittsburgh, PA 15234 www.ldanatl.org
Learning Disabilities Families and Friends
P.O. Box 27472, Lansing, MI 48909-7472
(517) 393-5333 *Parents Support Group
National Center for Learning Disabilities
381 Park Avenue South, Suite 1420, New York, NY 10016 (212) 545-7510; www.ncld.org or www.ld.org/NCLB
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Muscular Dystrophy
Muscular Dystrophy Association
3300 E. Sunrise Drive Tucson, AZ 85718-3208 (602) 529-2000; www.mdausa.org
Nonverbal Learning Disorders
Nonverbal Learning Disorders Association www.nlda.org
Nonverbal Learning Disorder on the Web www.nldontheweb.org
NLD Parent Support Group: For parents of children with or without an official diagnosis. Meets on the second Wednesday of every month at 7:30pm at the Vista Fire House on Rte 123.
Alice Capozzi: ACAPO179@aol.com or check out their website at: http://wotan.liu.edu/~jegs/NLD1-homepage.html
Pediatrics
ALSAC-St. Jude Children’s Research Hospital, 501 St. Jude Place, Memphis, TN 38105 (901) 522-9733, (800) 877-5833; www.stjude.org
Association for the Care of Children’s Health, 7910 Woodmont Ave., Suite 300, Bethesda, MD 20814 (301) 654-6549 www.acch.org
Community Council Parent's Support Group
5710 Stewart Street, Philadelphia, PA 19131
(215) 473-8744
Parents Helping Parents
3041 Olcott Street, Santa Clara, CA 95054-3222 (408) 727-5775; www.php.com
Family Network on Disabilities
5510 Gray Street, Suite 220, Tampa, Fl 33609
March of Dimes Birth Defects Foundation
1275 Mamaroneck Ave., White Plains, NY 10605
(914) 428-7100
National Center for Youth with Disabilities
420 Delaware St. SE, Univ. of Minnesota, Box 721-UMHC, Minneapolis, MN 55455
National Father’s Network
16120 NE 8th Street, Seattle, WA 98008
(206) 747-4004 x218
National Information Center for Children & Youth with Disabilities
P.O. Box 1492, Washington, DC 20013-1492
(800) 695-0285
National Information Clearinghouse (NIC) for Infants with Disabilities and Life Threatening Conditions
National Information System Benson Building,
University of South Carolina Columbia, SC 29208
(800) 922-9234
National Organization for Fetal Alcohol Syndrome
1815 H Street, NW, Suite 600, Washington, DC 20006, (202) 785-4585; www.nofas.org
National Parent Network on Disabilities
1130 17th Street, NW, Suite 400, Washington, DC 20036, (202) 463-2299; www.npnd.org
Parents Exchange
102 East Mermaid Lane, Philadelphia, PA 19118
(215) 242-9501 www.arch.gatech.edu/crt/techknow/education/parents
Philadelphia Society for Services to Children, 415 South 15th Street, Philadelphia, PA 19146
(215) 875-3400
Shriners
2900 Rocky Point Drive, Tampa, FL 33607
(800) 237-5055 www.shriners.com
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Recreational/Sports Services
Angelfish therapy, PT and OT in the water! www.angelfishtherapy.com
Backyard Sports, White Plains, NY Byardsports.com, , call Danny at 914-304-4052 or email at danny@byardsports.com
Boys and Girls Club of Mt. Kisco
(914) 666-8069
New Canaan YMCA
(Special Cares Camp Program)
203-966-4528
North East Special Recreation, Inc.
Year Round Programs and Summer Camps (914) 347-4409
Pegasus Therapeutic Riding
(203) 356-9504
Wee Will Ride Therapeutic Riding 914-763-6805
SPARC, Inc., Special Program And Resource Connection, is a not-for-profit agency providing social, recreation, and therapeutic services for youth and adults with developmental disabilities. We all seek satisfying and joyful experiences through socialization and leisure. Every person needs a time to relax, be with friends, develop new abilities, and learn about oneself. Since 1989, SPARC has been dedicated to delivering dynamic recreation opportunities to individuals with special needs and support services to their families and agencies. Click on services for youth, teen and adult programs.
http://www.sparcinc.org/services
Special Olympics
1350 New York Avenue, NW, Suite 500, Washington, DC 20005, (202) 393-1250 www.specialolympics.org
YM/YWCA of Northern Westchester
(914) 741-0333
Respite Services
Project Time-Out
(914) 949-7699 X335
Wagon Road Camp and Respite Services
(914) 238-4761
Sensory Integration
AOTA - American Occupational Therapy Association www.aota.org
The Cranial Academy A Component Society of the American Academy of Osteopathy www.cranialacademy.org
Occupational Therapy Associates http://www.otawatertown.com/index.html
Resources for the Sensory Processing Disorder Community www.sinetwork.org
Sensory Resources www.sensoryresources.com
Sibling Issues
Talkabouts support group for siblings in Putnam County (open to Westchester families as well), Joanne Carcare at (845)278-7600 x238.
NWCA (Northern Westchester Center for the Arts), Contact Jordan Jankus at (914) 666-6922.
Social Skills
Social Skills Groups for Boys and Girls (5-12 year-olds) led by Christopher Ricci, Ph.D. and Carolyn Grosso, Psy.D. 66 Main Street, Bedford Hills, NY 10507, (914) 666-0977. $135/intake interview, $65/group.
Educational assessments, tutoring, counseling www.mindworkscenter.com ServicesSupport
IRSC: Disability Links
www.irsc.org/disability.htm
SED VESID Life Long Services Network
www.vesid.nysed.gov/lsn/home.html
Social Security Online
www.ssa.gov
The Red Book
www.ssa.gov/work/Resources Toolkit/redbook99.pdf
Tutoring
Educational assessments, tutoring, counseling www.mindworkscenter.com
SUMMER OPPORTUNITIES
Ramapo for Children is proud to announce the start of FOOTHOLDS FOR THE FUTURE, a preparatory program for young adults with special needs who require supportive services on the road to independence. This program is designed to provide an inclusive group living experience focused on: building healthy relationships, learning essential life skills, and practicing job-related competencies. Ramapo will operate two 12-week sessions in 2009 and three 12-week sessions in 2010 at Ramapo’s Rhinebeck , NY campus. Participants may enroll in multiple sessions.
2009 Program Dates:
Summer program : June-September 2009 (start and end dates are flexible)
Fall program: September 2-November 24, 2009
For more information and to apply, contact Mike Fleet at footholds@ramapoforchildren.org
Vision
American Council of the Blind
1155 15th Street, NW, Suite 720, Washington, DC 20005, (202) 467-5081; www.acb.org
American Foundation for the Blind
15 West 16th Street, New York, NY 10011
(800) 232-5463; www.afb.org
American Optometric Association
243 N. Lindbergh Blvd., St. Louis, MO 63141
(314) 991-4100 www.aoanet.org
Columbia Lighthouse for the Blind Children’s Program
1421 P St. NW, Washington, DC 20005
(202) 462-2900 ext. 3013; www.clb.org
Commission for the Blind and Visually Handicapped White Plains (914) 993-5370
The Foundation Fighting Blindness
Executive Plaza 1, Suite 800, 11350 McCormick Road, Hunt Valley, MD 21031 (410) 785-1414 (800) 683-5555 (800) 683-5551 (TDD); www.blindness.org
The Jewish Guild for the Blind
15 West 65th St., N.Y., N.Y. 10023
(800) 284-4422, www.jgb.org
National Center for Vision and Child Development
A Division of the Lighthouse, Inc., 800 Second Ave., New York, NY 10017
National Association For Visually Handicapped
22 W. 21st St., 6th Floor, New York, NY 10010,
(304) 525-8026; www.navh.org
Prevent Blindness America
500 East Remington Road, Schaumburg, IL 60173 (800) 331-2020; www.preventblindness.org
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